"He Dreams of Walking". A Child with Cerebral Palsy Needs Support

Елена Краснова Local news
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Navid was born completely healthy and developed like all his peers. However, when he turned five, the first alarming signs began to appear: he started to stand on his toes and walk on tiptoes. Doctors initially suspected a valgus deformity of the foot, but later found out that the boy had Duchenne muscular dystrophy. Subsequently, the diagnosis changed to “cerebral palsy of the spastic tetraplegic form, neurotic syndrome.” “When the diagnosis was made, a medication was prescribed that was unavailable in Kyrgyzstan. Even through the Ministry of Health, it could not be obtained. As a result, I had to travel with my son to Moscow,” recalls Umida, Navid's mother.

In Moscow, they turned to the charitable organization "House with a Lighthouse," where they received assistance with examinations and organizing rehabilitation.

“There we started taking the prescribed medication; however, Navid's condition continued to worsen. His legs began to turn inward, and we decided to go to Vladikavkaz to perform an Achilles tendon surgery. After the operation, Navid spent two months in a cast to straighten his legs,” Umida recounts.

After that, the boy underwent a rhizotomy. After all the procedures in Russia, Navid and his mother returned to Kyrgyzstan, where he requires constant and expensive rehabilitation in Bishkek, which his single mother cannot afford.

“Navid constantly cries and says, ‘I want to walk.’ It is very hard to hear this from my child. I try not to show weakness because I understand that if I break down, he will too,” the mother says bitterly.

“I appeal to everyone who cares for help. Rehabilitation can really help my child regain movement. He has no one but me. I want my son to be able to walk while I am still alive.”

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