A Difficult Path to Diagnosis
On October 11 of last year, Aydai was hospitalized in the nephrology department of NCOMID with a diagnosis of "nephrotic syndrome." After two weeks of treatment, she was discharged.
The girl's mother recounts: "After suffering from ARVI, my daughter began to have kidney pain."
A week later, after her discharge, Aydai felt severe pain in her leg at night, which was cold to the touch. Concerned, her mother returned to the doctor, and the girl was hospitalized again.
According to Indira, "my daughter was treated by the same doctor, but her requests for a more thorough examination were ignored." As a result, on November 9, the girl lost consciousness.
Only then did another doctor, upon hearing the symptoms, suspect that the diagnosis might be incorrect. A repeat ultrasound, performed on a different machine, confirmed the presence of thrombosis in the lower limb, which had not been detected in the first examination.
"We were transferred to the vascular surgery department of the National Hospital, where a council was held and conservative treatment was prescribed. However, this did not yield results, and my daughter's pain was unbearable. Eventually, she was prescribed narcotic painkillers," the mother adds.
Photos from the hospital
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According to the mother, "the doctors hoped that blood flow would be restored, but eventually said that the leg needed to be amputated. We refused the operation as we lost trust in them."
A Trip to Turkey and Complicated Surgeries
The family took Aydai to a clinic in Turkey, where she underwent ten surgeries over seven months, including the amputation of her leg and attempts to preserve her knee for prosthetics.
The clinic's professor commented on the situation, noting that when the illness first manifested, there were still chances to save the leg, but those opportunities were missed. Indira worries that she could have saved her daughter if the doctors in Kyrgyzstan had referred them abroad in time.
We arrived in Turkey in critical condition, and time had been lost. If the diagnosis had been made on time, the leg could have been saved.
Photos after the amputation
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An Appeal to the Authorities
Upon returning from Turkey, Indira began seeking justice and writing complaints to various authorities, but received no response.
After numerous attempts, she turned to the ombudsman Jamilya Dzhamanbaeva for help in organizing an independent examination and investigation of the case.
The Ombudsman Institute has already initiated a check, sending requests to the Ministry of Health and other agencies to clarify the situation.
The Internal Affairs Department of the Lenin District of Bishkek has opened a criminal case, and a forensic medical examination has been appointed.
Indira appeals to the country's leaders to take control of the situation: "My daughter asks if those who deprived her of her leg have been punished. I don’t know what to tell her."
I request a personal meeting to discuss all the details.
The Need for a Prosthesis
Indira has lost her job while caring for her daughter and has gone into debt to pay for treatment. "We spent $60,000 on surgeries in Turkey. I reached out for help to deputy Shaiyrbek Tashiev, who supported us both morally and financially," she says.
Aydai before the illness and amputation.
Now the girl needs a prosthesis, but her mother cannot afford to buy one. "My daughter constantly asks when she will be able to go outside and if she can walk with the prosthesis like she used to. It’s hard for both of us," Indira shares.
I ask everyone who can help raise funds for a prosthesis so that my daughter can walk again.
